Building the Noise Podcast

WHAT 20 SURGERIES TAUGHT ME ABOUT LIFE Most people would be broken by 20 surgeries. Matt Hay lost his hearing, faced brain tumors, endured facial paralysis, and spent years navigating a rare disease that affects only a tiny fraction of the population. Yet today, he calls himself one of the luckiest people in the world. In this powerful conversation, Matt shares the lessons he learned through adversity, the moment that transformed him from a patient into a patient advocate, and why sufferi...

Most people only see the diagnosis. They don’t see what chronic illness quietly takes from someone’s identity, relationships, confidence, and everyday life.In this powerful episode, patient advocate Shelley Gerson shares her journey from surviving one of healthcare’s darkest moments to becoming a voice for patients inside the biotech industry itself.From being told “women don’t have hemophilia” to helping shape patient-centered healthcare programs, Shelley opens up about what patients truly

Why are patients losing trust in the healthcare system and who’s actually listening to them anymore? In this episode, healthcare advocate Brandon Macsata joins us for a raw and honest conversation about patient advocacy, the failures of modern healthcare, insurance denials, AI in medicine, HIV activism, and why patients are still being excluded from decisions that directly impact their lives. Brandon has spent over 30 years fighting for patients at the intersection of healthcare policy, HIV a...

What if life-saving medicine already exists… but patients still can’t get it?In this episode, Sanofi’s Eric Racine breaks down the real crisis in healthcare and it’s not innovation. It’s access.From personal tragedy to leading patient advocacy at one of the world’s largest pharmaceutical companies, Eric shares why millions of patients still fall through the cracks and what needs to change.Eric Racine is a global leader in patient advocacy at Sanofi, with deep experience across healthcare s

What if your diagnosis wasn’t the end… but the beginning? After being diagnosed with HIV, everything changed but not in the way you might think. This powerful story is about finding purpose, strength, and a new life when it felt like everything was over. Sometimes the hardest moments become the turning point. We dive into: Why patients feel ignored and unheard How pharma and healthcare systems lose trust The hidden struggles in rural healthcare Why community-based care is the real solutio...

Our goal is to help patients navigate the complex and often confusing world of the US healthcare system. In each episode, we discuss important topics, such as how to choose a healthcare provider, how to understand your insurance coverage, & how to advocate for yourself as a patient. We also interview healthcare experts and patients to provide a range of perspectives on these topics.Building the Noise will also provide transparency into the many different elements of the healthcare system inclu